Episode #0110 Colleen Caul: Run for Roses

Colleen Caul was born into a big Irish family in St. Louis, Mo. Growing up, Colleen was always active, but her whole life changed in 2004, when her uncle started to coach her little sister, Katie Rose, how to run. Katie Rose has cystic fibrosis. Elated to see the positive effect that running was having on her sister’s health, and inspired by their dedication, Colleen started to run.

In the past five years, Colleen has completed four marathons and recently completed the “Run for Roses,” a 65-day running pilgrimage to spread awareness, raise funds and share stories about cystic fibrosis.

Colleen founded the Run for Roses Foundation (www.runforroses.com) to support her efforts to raise funds toward a cure for CF.

-    In honor of her sister, Katie Rose, Colleen ran from St. Louis to New York City from July to September 2011. She ran 1,000 miles in 65 days for one dream: to cure cystic fibrosis.
-    Colleen ran 15.5 miles each day, and her stretching routine was about three hours a day. She ate Starburst candy for energy during her runs and refueled with chocolate milk.
-    During the 65-day run, Colleen blogged with friends and fans. In Ohio, she had the opportunity to run with a family that has two children with CF. “It was amazing, they both ran four miles with me,” Colleen says.
-    “People with CF never have a day off … when things got tough during a run, I just thought of that and said I can do it!” she says.
-     “Crossing the finish line in New York City was incredible,” Colleen says. “Katie, family and friends joined in for the last five miles – it was an out-of-body experience that I will never forget.”
-    The overall message Colleen wants Run for Roses to communicate is HOPE & POSITIVITY.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Topfitte oma schaatst 200 km voor goed doel

komt de totale opbrengst ten goede aan wetenschappelijk onderzoek naar Cystic Fibrosis (CF), taaislijmziekte. Etta van der Aa bereidt zich serieus voor op


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

An rhs gene of Pseudomonas aeruginosa encodes a virulence protein

The rhs genes are a family of enigmatic composite genes widespread among Gramnegative bacteria In this study we characterized rhsT a Pseudomonas aeruginosa
www.pnas.org/content/early/2012/01/…/1109285109.abstract


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Cystic Fibrosis Foundation – Western Pennsylvania Chapter

Cystic Fibrosis Foundation – Click here for homepage ABOUT CYSTIC FIBROSIS · ABOUT THE CYSTIC FIBROSIS FOUNDATION · LIVING WITH CYSTIC
www.cff.org/chapters/wpa/passionforwine


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Cystic Fibrosis Foundation's Brewer's Ball Back for 2012 | DC Beer

You may remember that last year, DCBeer.com got involved with the Cystic Fibrosis Foundation's Brewer's Ball event. This is an event that blends philanthropy
dcbeer.com/…/cystic-fibrosis-foundations-brewers-ball-back-f…


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Cystic Fibrosis Forums – Adjusting to a new life

How do you adjust from being a cystic fibrosis patient to a transplant patient? I am planning on going home from the hospital tomorrow following my transplant
forums.cysticfibrosis.com/messageview.cfm?catid=3353…


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Fighting Cystic Fibrosis: Mt. Pleasant family hosts fundraisers to raise awareness

By RYAN BERLIN Fearing the worst, Greg and Jeanne Howell didn't know what to expect when they discovered their first child had Cystic Fibrosis only days after he was born. Fourteen months later, Parker is what doctors like to call a “healthy CFer,”
See all stories on this topic »


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Vertex Pharmaceuticals' CEO Presents at JPMorgan Global Healthcare Conference

It's my pleasure to introduce Vertex Pharmaceuticals, one of the leaders in the hep C, cystic fibrosis, RA and other spaces, which I am sure, will be detailed. And speaking on behalf of Vertex is its current CEO, Matt Emmens who will then introduce the
See all stories on this topic »


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

See the Clifton Hill sights for just a buck this Sunday

“It's for local people and their guests,” said Nancy Clayton, vice-president of the Niagara Chapter of Cystic Fibrosis Canada of a made-in-Niagara Falls fundraising tradition which stretches back 24 years. That tradition is the group's annual $1 day at
See all stories on this topic »


Tuesday, January 10th, 2012 Cystic Fibrosis No Comments

Episode #0109 Josh Mogren: Moving Forward After Losing a Sister to CF

Josh Mogren: Moving Forward After Losing a Sister to CF

Josh Mogren is a 32-year-old with cystic fibrosis and cerebral palsy. Josh, who lives in St. Paul, Minn., discusses overcoming all obstacles with CF, including the loss of his sister, Angela, to CF. Josh has been happily married to Carly for five years, and also enjoys the company of their two dogs and the puppet, “Moganko.”  Josh has a blog (www.welcometojoshland.com), is a movie buff, enjoys singing karaoke, and is LIVING BREATHING & LOVING LIFE. 

  • Josh was diagnosed with CF at birth; his older sister, Angela, also had CF.
  • Josh has fond memories of his Angela: “Angie was strong-willed, very funny and a real prankster. My sister taught me to be a strong advocate for myself, and that is very important when you have an illness like CF,” Josh says.
  • “Growing up, Angie was a lot sicker than I was, and that was very frustrating for her. I felt terrible about it ‘cause I was doing so much better – it was not fair,” he says.
  • Josh believes it’s ok to be sad but that people with CF have to keep fighting and be HAPPY! 
  • “Having fun and making light of things is the key to being happy. That is why I created my blog and YouTube site (“Welcome to Joshland”). I share a lot of my thoughts and stories about my life, CF, and otherwise,” Josh says. 
  • Josh appreciates things a lot more since the loss of Angie, and he feels blessed to have a great family and friends.

This “LIVING. BREATHING. SUCCEEDING.” Podcast/Vodcast is made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.


Monday, January 9th, 2012 Cystic Fibrosis No Comments

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